Welcome to the Eating Disorders Quality of Life Website
What is the EDQLS?
The EDQLS is a condition-specific quality of life (QL) measure for use with adolescents and adults with eating disorders (ED) such as anorexia and bulimia. It has been extensively developed and tested with adults and adolescents with input from family and eating disorders health professionals.
It was developed in 2004/05 in the Calgary Eating Disorders Program in multiple stages of testing and refinement. It was then field tested in 2006/07 at 12 eating disorders programs and over 170 patients aged 14-60. It was specifically designed to ensure appropriateness for the younger ages of this range, and is
currently being tested in patients aged 9-13.
The new instrument will be used to help evaluate treatment effectiveness and progress.
Our work with the EDQLS continues!
- Over the last few months we've refined 6 items in the piloted version of the EDQLS.
- We are now releasing VERSION 1.0 of the instrument for use.
- Current activities for the EDQLS also include Pediatric validation of the EDQLS in ages 9-13. The validation will take place at 3 sites: Calgary, Vancouver and Winnipeg.
Research on the Eating Disorders Quality of Life Scale has been published in various peer reviewed journals. The most comprehensive publication on the EDQLS is http://www.hqlo.com/content/5/1/23
Eating Disorder treatment has traditionally used change in symptoms and behaviors as outcome measures.
These are important, but increasingly quality of life (QL) is seen as another
crucial outcome measure for progressive, patient-centred programs
across many health conditions. Quality of Life is the outcome typically most valued
by patients and their families - their involvement in treatment is
ultimately aimed at a desire for a better life more broadly. See a few examples below...
Example Item: I'm constantly trying to fix my body
Relationships with Others Domain
Example Item: I turn down opportunities to go out with friends
Example Item: I think about food constantly throughout the day
Example Item: I feel I don't have a life
Example Item: I consider my own happiness when making choices